Getting back to blogging!
Since I started this blog in 2011, I have stopped and started so many times I’ve lost count! But now, I need to work harder to ditch the cape than ever before.
You see, now I have two children with chronic medical conditions, and I work, and write, and am a single mum… Alright, the chronic medical conditions are nothing new, but they have got much worse over the last 12 months and it’s made life more difficult than before.
Last Easter, my older son came down with a condition called Complex Regional Pain Syndrome. This is a neurological condition that means his brain is sending weird messages to his leg to say there is an injury when it isn’t. This condition has enabled us to see the right people to diagnose Fibromyalgia, a condition he has had for the last 6 years, but we haven’t had a name for it.
My younger son has myalgic encephalomyelitis, otherwise known as ME/CFS or chronic fatigue syndrome. He’s had this for three and a half years. Recently he’s been diagnosed with neurally mediated hypotension, in layman’s terms, he has very low blood pressure.
My older son has multiple medical appointments every week, my younger son doesn’t have quite as many appointments, but he has regular follow up appointments with his specialists. For many of these appointments, they are given to us and we don’t have much choice when they are. So I am juggling these with work!
As well as this, I need to feed the family, do the housework, and spend time looking after myself!! Life is crazy, but I’m slowly learning strategies to help us cope with everyday life.
I hope you will join me on my journey to realise I can’t do everything, and share with me your suggestions and experiences when I ask questions.